Jinxed's blog: "Pray for Jessie"

Why cant anything just go right?So Jess is doing her home injections and I got a little worried about some side effects.They are the same side effects I brought to their attention when she went through the initial 30day IV phase.Her eyes were bothering her and she was getting headaches.As I read the insert in the box of her injection it sayd prior to taking the interfuron the patient should have an eye exam and if any eye problems occur during treatment to seek advice immediatly.So I called and wanted an appointment asap.Keep in mind that we told them bout eye problems before and they said it wa normal.So we go in to the doctor on 2-2-09 and of course the doctor doesnt even see her,he sends his assistant who I dont like anyway.She is the type that when you are talking she talks over you and has a way to make you feel 2 feet tall.Well she says she is worried and want Jess to STOP her interfuron until she sees an opthomologist and gets an MRI.So she goes and gets a card and had a dr's name and number on it and says they will be expecting my call the next morning at 7:30.I also told the dcs assistant that my other daughter is sick,do I need to worry about Jess getting sick. She said no virus would try and enter Jess with all the meds she has in her. So I call that number on the dot the next morning and they tell me hey will see her that day but they dont take my insurance. They said they take checks though.Like I have thousands of dollars to pay for an MRI when I can go to someone who takes my insurance.I called Jessie's dr back and told them to refer me elsewhere.They got me an appt for the eye dr but were looking for who would do the MRI. Today I get a call from a doctor at 7am saying they can do the MRI this morning and I told them I needed more notice and I would call back to schedule.I dont sleep right so I take a sedative to sleep.There was no way I woulda been able to drive after having the meds in my system and sleeping 1 hr be4 that call.Jessie's doctors know I work nights and I told them from the door mornings were no problem as long as I knew beforehand.I would just stay up and sleep after the appointments. So the dr assistant calls me today and proceeds to tell me she is disappointed that I would not take my daughter to the appointment.I told her I work nights and have another sick kid.She had the nerve to tell me I shoulda found a sitter or left her here!Everytime I tried to speak she spoke over top of me.So I told her in no uncertain terms to never call me again and that the Dr better call me.None of this would be happeneing now if they had done they eye exam be4 the treatments and had listened to me prior to now.She told me she wasnt going to get into medical concerns with me!!! Its MY daughter! ok im done ranting for now cuz my blood pressure is through the roof!!